As part of National Hospice Week, Hospital Sisters Health System (HSHS) is celebrating the 10th anniversary of its Illinois hospice program by addressing common misconceptions that often cloud public understanding of hospice care. Since launching in October 2014, HSHS Home Care’s hospice program has provided compassionate end-of-life support to thousands of patients across Illinois.
“The benefits of hospice are too important to be overshadowed by misinformation,” said Shawna O’Dell, RN, MSN, FACHE, Vice President of Care Management and Post Acute Care at HSHS. “Our trained caregivers hear many myths from patients and their families, so we want to set the record straight about the true value and purpose of hospice care.”
To mark the milestone, HSHS released a list of the ten most common myths about hospice care, including some surprising truths that might shift perspectives about end-of-life services.
Myth #1: Hospice care means giving up.
Hospice is not about giving up; it is about ensuring comfort and dignity. It provides relief from pain, anxiety, and other distressing symptoms to help patients live their remaining days with quality.
Myth #2: Hospice is only for those with hours or days left to live.
Hospice emphasizes quality of life, with the average Medicare patient’s hospice stay lasting about three months. Some, like former President Jimmy Carter, have even remained in hospice care for extended periods.
Myth #3: Only doctors can recommend hospice.
Anyone – including patients and family members – can make a hospice referral. Hospice agencies then coordinate with a patient’s doctor to initiate services.
Myth #4: Hospice removes control from patients.
Hospice care respects the autonomy of patients. Treatment plans are developed with input from patients and families, allowing patients to adjust or leave hospice if they wish to pursue other options.
Myth #5: Hospice requires a Do Not Resuscitate (DNR) order.
Patients do not need a DNR to enter hospice. Staff can help review other important directives, such as a power of attorney for health care, but a DNR is not a requirement.
Myth #6: Hospice patients cannot receive other medical care.
Hospice patients may still receive treatment for conditions unrelated to their terminal illness, like an injury. Medications for other health issues are also part of ongoing care.
Myth #7: Hospice is only for cancer patients or the elderly.
Available to anyone facing a life-limiting condition, hospice serves patients with various diagnoses, including Alzheimer’s disease, heart failure, and chronic obstructive pulmonary disease.
Myth #8: Hospice care and palliative care are the same.
Though both focus on comfort, hospice is for those with a life expectancy of six months or less who are not pursuing further curative treatment. Palliative care, on the other hand, can be accessed alongside curative treatment.
Myth #9: Hospice care is unaffordable.
Medicare, Illinois Medicaid, the Department of Veterans Affairs, and many private insurance plans cover hospice, making it accessible to those who need it without financial strain.
Myth #10: Hospice doesn’t make a difference.
Studies show that patients in hospice can actually live a bit longer. This additional time can allow patients to share meaningful moments with loved ones.
HSHS Home Care’s hospice services are available to residents in 37 counties throughout central and southern Illinois, in partnership with nine HSHS hospitals across the state. Hospice patients receive 24/7 access to a nurse for round-the-clock care and support. For more information about HSHS hospice services, visit www.hshshomecare.org or call 800-551-6566.